BEING RARE PODCAST

Raw | Unedited | Unscripted

Welcome to the Being Rare Podcast!

Hosted by Sarita Edwards, Being Rare is an online community of rare disease conversations. We’ll have intimate and sometimes difficult conversations about issues in the rare disease space. Popular for our 1 minute episodes, Being Rare offers insight, perspective, and positive reinforcement. Being Rare is not just a podcast; it’s a talk radio style platform that aims to make the extraordinary world of rare diseases accessible, relatable, and impactful.

Check out our latest episode!

Ep 100. Protecting Our Futures: Black Maternal Health and Child Abuse Neglect & Prevention – Being Rare Podcast

In this episode, Sarita talks about black maternal health and child abuse neglect and prevention. April 11-17 is Black Maternal Health Week. Black women are three times more likely to die from a pregnancy-related cause than white women. The month of April is dedicated to Child Abuse and Neglect Prevention. Children with disabilities are at least three times more likely to be abused or neglected than their peers without disabilities. Tune in as Sarita shares stats, a personal experience, and resources! Watch the live recording on YouTube: https://youtu.be/ECaXKysDPyA — Support this podcast: https://podcasters.spotify.com/pod/show/beingrare/support
  1. Ep 100. Protecting Our Futures: Black Maternal Health and Child Abuse Neglect & Prevention
  2. Ep 99. Funding Challenges for Small Nonprofits, Research, Scholarships, Inclusion, and More!
  3. Ep 98. What Are You Telling Families Who Get A Trisomy 18 Diagnosis?
  4. Ep 97. March is Trisomy Awareness Month & Women's History Month
  5. Ep 96. How We Chose to Navigate the Holidays and the Final "Happy New Year" of 2024!

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Email us: podcast@theewefoundation.org